In his latest video, British YouTuber Caspar Lee took the time to shine a light on a disease many know little about. Lee gathered a group of young sufferers of Tourette’s and candidly discussed the what it’s like growing up with the syndrome. Caspar and his guests discuss what it’s like growing up with ticks and how to live a normal life with Tourette’s, touching on the aspects of the disorder that aren’t often talked about outwardly.
Not only are the one-on-one interviews lighthearted, they’re informative, showing what everyday life is like for people with Tourette’s. Caspar explains that he was six-years-old when he first discovered he had Tourette’s, which he has in common with one of his delightful guests, Thomas.
TL;DR Tourette's is a disorder that most people need to learn more about, I want more Tourette's role models, donate to @tourettesaction, and thanks to @Caspar_Lee for using your reach to further education on TS! (8/8)
— Serena Bhandari (@saibhandari) May 28, 2018
The interviewees start off talking about the first time they realized they had Tourette’s. Their experiences were similar, though each described a different tick. For Caspar and another guest, it was a pig snort. Another teen describes scrunching her eyes and tensing parts of her body.
Caspar approaches the subject of Tourette’s by keeping the tone light and fun, hoping to educate without dramatics. This wasn’t the first time the YouTuber addressed Tourette’s on his channel. In an April 2017 video, Caspar opened up about his life with Tourette’s through an animated short. In it, and again in the more recent interviews, he describes Tourette’s as an “itch that just wouldn’t go away.”
As expected, the response to Caspar’s video has been largely positive, with some thanking him for allowing his guests the chance to tell their story.
@Caspar_Lee I'm crying, thanks for giving them the opportunity to speak up about Tourette's it isn't something that everybody knows about and I discovered it because of you, keep being so inspirational, I love you lots xx https://t.co/mGYCRP8gHT
— Camila met NHC ♥️ (@suggsmuffins) May 27, 2018
I’ve had Tourette’s Syndrome since a very young age. Thank you so much for doing this video @Caspar_Lee It’s so important for people to understand more about Tourette’s Syndrome. https://t.co/5UPf910wg6
— Clementine Rose (@clemloves) May 28, 2018
Though the video was specifically about Tourette’s, sufferers of other disorders, like Asperger’s, felt they could relate to the stories being told.
I’m fairly surprised at how much I related to this. I mean, I don’t have Tourette’s, but I do have Asperger’s. Different diagnoses, but there are a fair few similarities in the symptoms – mainly the tics. Thank you for making this video, @Caspar_Lee. Keep it up!! https://t.co/IxVaQRMPRO
— Jenny Matthews (@J3ennife4) May 27, 2018
Since the video breaks down the basics of Tourette’s, it even helped at least one Twitter user realize that they may be living with “tick syndrome” and inspired others to come out with their experience.
Just watched the latest @Caspar_Lee video about people having Tourettes and I figured out that I too have this thing called tick syndrome. It started when I was 6/7. My family and I knew that there was something wrong with my movements but we don't have any idea what its called.
— Jose Michael Ludovico (@JoseLudov) May 27, 2018
— Joe Tasker (@JoeTasker) May 28, 2018
Caspar’s video is an inspiration to those with Tourette’s and informative to people with little knowledge about it. According to the video description, proceeds generated from views will be donated to Tourette’s Action.
thank you so much caspar. i have tourette’s and you bringing light onto this means the world to me. people often misunderstand and just assume tourette’s is swearing, however you making this video and creating awareness will finally show people what it really is <3
— molly (@mollydorothyy) May 28, 2018
H/T: Twitter, YouTube